She has a child, a husband and SMA. Ewelina Bruk about love and motherhood paid for with tears of powerlessness
Ewelina Bruk, wife and mother, author of the blog Mam to w gengen, talks to “Wprost” about what the everyday life of a person with spinal muscular atrophy is like.
Paulina Cywka, “Directly”: When did you find out about the disease?
Ewelina Bruk: When I started getting sick, I was a child. I was a year and a half when the first symptoms appeared, and three when the diagnosis was made.
What happened next?
Honestly, I don't remember much from my childhood. All in all, it was quite ordinary, apart from frequent trips to rehabilitation sessions. I always went with my mother, but everyone was very supportive. I never felt rejected or different.
How did those around you react to your disability?
I don't remember what reactions I encountered as a child. However, in my teenage years and adulthood, I sometimes became the object of glances, and this is still the case today. However, it is difficult for me to determine what their exact meaning is. I don't think anyone stops me on the street. He expresses no regrets or regrets about my situation. He doesn't say he's sorry etc. Besides, I try not to worry too much about other people's opinions.
I lead a normal life, like most people. I have a house, a job, a husband and a child.
How did you meet your husband?
My husband and I met on an internet portal. He wrote to me. I was going through a very bad time at the time and I didn't even feel like replying to him. However, our friendship developed quickly, even though we waited a month for the first meeting. Sebastian worked as a driver and was on a trip. When he came back, he came to me straight away and that's how it all started. After a week he had to go on tour again, so I went with him. And since then, for almost 10 years, we have been inseparable.
Were you not afraid of the reaction of those around you to your relationship?
